Hearing that someone you love has a brain tumor is more terrifying than it even sounds. My husband Kevin, who was, and still IS, a strong, proud, determined, and successful small business owner, was diagnosed with a rare tumor called a papillary craniopharyngioma on Jan. 25, 2018. In the hours, days, weeks, months, and years that followed, […]
Aubrey was diagnosed with a Juvenile Pilocytic Astrocytoma of the brain stem in 2005 at the age of three. She had brain surgery at Mayo Clinic, where they were able to remove about 50% of her tumor. From 2006 through 2014, she was on and off four different chemo therapies to slow the growth of […]
A few months after her third birthday, Ana was diagnosed with a Low Grade Pilocytic Astrocytoma, a slow-growing tumor in her brainstem. She was a spunky little 3-year-old when this journey began, facing a battle that seemed far too big for her little body. The tumor is in a place too delicate to remove, so […]
In the fall of 2015, our 13 year old son Connor started getting headaches from being in the sun too long. He said it was too bright out. He then started getting severe morning headaches when he woke up in the morning. So severe that he would vomit. They would subside fairly quickly, but would […]
GBM: These three letters have taken a lot from me. My beloved occupation, hints of independence, occasional confidence, a sense of security, beautiful bike rides, a hobby of crafting, the ability to lift a glass (Solo or otherwise) or feel my sweet husband holding my left hand. GBM does not let me wear earrings, clasp […]
